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THE INTRO STORY
My ARVC journey started in the summer of 1992 aged just 16. Feeling invincible, as all teenage boys do, I was excelling at sport, especially county level running and had a passion, bordering on obsession, for Mountain Biking. I was enthused about life and all the possibilities open to me once I finished my GCSEs. Little did I know that life was to change so suddenly and scarily in the blink of an eye, as I became the one in 5000.
This blog is intended to offer an insight to anyone who has an interest. My journey, like every ARVC patient, is unique. Mine is far from typical, more a malfunctioning sat-nav than a concise A2B so please don't think my experiences are what is to be expected with ARVC treatment.
Please feel free to leave any comments you wish or ask any questions on the posts. I'll always try my best to answer them.
Nick

BUT YOU LOOK SO WELL.....?
My journey to heart transplant and beyond (hopefully!)
A 26 year reflection of Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), the past challenges and rewards and the new challenges to come
January 30, 2018
The healing process was going well, there were hiccups along the way and the pneumonia certainly was a challenge I hadn't considered, but in general I started to be able to enjoy life with the constant threat of arrhythmia becoming more of a memory than an everyday con...
January 27, 2018
Doug was to go on to tell me more about the circumstances of the accident. I was under the impression that James and Mary had been in a car crash, I desperately hoped that the accident hadn't been caused by a defect on James' car. Were there other casualties? Doug e...
January 25, 2018
The door to the theatre had clearly been fitted with a Men In Black style memory wiping device as I don't recall anything past that point.
Paul has subsequently relayed the events from the three days I was in ITU to me. He informed me I was kept at a forced low body te...
January 24, 2018
I arrived at the hospital mentally prepared and full of optimism. I felt empowered and proud knowing my experiences and challenges of the past six years hadn't broken me. I'd been denied of any physical control of what was happening inside my body but I was still the...
January 23, 2018
The prospect of my parents marriage breaking down was something I'd never thought possible. I recall it occurring in friend's lives throughout school and thinking "I'm so glad that will never happen to my mum and dad". It was simply incomprehensible.
My parents did a g...
January 22, 2018
The day of the scheduled ablation came around quickly. I'd had to stop my sotalol in the run up to the operation, a crucial part of the procedure is the "mapping" where the consultant will produce an electrical map of the right ventricle to find the precise pin point o...
January 22, 2018
In the run up to college, 1993 was very kind to me. The sotalol, despite my misgivings, proved to keep me out of trouble. It was also great to have my brother Paul back home from college in Bristol where he was training as an aircraft maintenance engineer. The events...
January 20, 2018
I was aware that beta-blockers were abused by athletes who sought to make performance improvements and as such they are a banned substance. However, in my naivety, I didn't appreciate they are only of benefit to the likes of archers, golfers, marksmen and those that r...
January 20, 2018
Picture the scene, it's summer 1992. Ah the 90's, fan-bloody-tastic! Life is good, I'm loving everything, school, mates, no bills, leisure time seemingly ad infinitum, copious amounts of hearty food served up by my mum meaning even more energy for my real passion, sp...
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