BUT YOU LOOK SO WELL.....?

My journey to heart transplant and beyond (hopefully!)

A 26 year reflection of Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), the past challenges and rewards and the new challenges to come

THE INTRO STORY

My ARVC journey started in the summer of 1992 aged just 16.  Feeling invincible, as all teenage boys do, I was excelling at sport, especially county level running and had a passion, bordering on obsession, for Mountain Biking. I was enthused about life and all the possibilities open to me once I finished my GCSEs.  Little did I know that life was to change so suddenly and scarily in the blink of an eye, as I became the one in 5000.

This blog is intended to offer an insight to anyone who has an interest. My journey, like every ARVC patient, is unique. Mine is far from typical, more a malfunctioning sat-nav than a concise A2B so please don't think my experiences are what is to be expected with ARVC treatment.

Please feel free to leave any comments you wish or ask any questions on the posts.  I'll always try my best to answer them.

Nick

 

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